Our Little Miracle Man…

This morning we took Lev for his last post-op doctor’s appointment. This one was with his primary care physician who will now be caring for him.

The doctor was amazed out how well he is doing and I (Rosemary) told her that we believe his speed of recovery has been supernatural.

And you know what the doctor said? She actually … agreed. The doctor actually said, “This recovery is a miracle.”

Wow… just let that sink in. The doctor said Lev’s recovery is supernatural…

Lev’s Open Heart Surgery Update #5 – Friday, August 24th, 10:00 p.m.

The day began at 8 a.m. with the surgeon coming to visit. He wanted to go for a walk with Lev. Lev didn’t.

The surgeon insisted…

Lev’s Open Heart Surgery Update #4 – Wednesday, August 22th, 10:00 p.m.

So the saga of tiny steps toward home continues with…

…food!

I had the distinct privilege to be the one to give Lev tiny nibbles of burrito(!), tiny spoonfuls of vanilla pudding(!), and sips of milk(!) at around 6:45 this evening!

Food, is of course, kinda a big deal…

Lev’s Open Heart Surgery Update #3 – Wednesday, August 22th, 10:30 a.m.

I don’t know if you’ve ever had a little person in the hospital (for an extended period of time), but if you have, you know that the “healing” process is really a “removing” process. The goal is to get your little person out of the hospital without any of the tubes, wires, etc. stuck to them. In fact, nearly every time, the hospital will only release you when EVERYTHING has been removed. We are remembering the excitement we had with Lev’s previous surgeries (Click here for 1st Surgery and 2nd Surgery Blog links) as “things” were removed! May it come increasingly swiftly, God!

So when Rosie called me this morning (she spent the night with Lev at the hospital) and told me that they were going to be removing the pacemaker leads from Lev – we were both very excited! Our surgeon came by this morning (at 5:30 a.m.!) …

Lev’s Open Heart Surgery Update #1 – Monday, August 20th, 10 p.m.

It is finally time! After months of preparation Lev is entering the hospital tomorrow (at 6 a.m.!) for his final open heart surgery.

For those of you who don’t know the ongoing story of Lev and his heart please go to www.iheartlev.com and read up on his first two surgeries. You can also go to some of the posts (here and here) to read about Lev’s catheter procedure earlier this year to “make sure” he was a good candidate for his open heart surgery. Or you can go to the “Categories” bar and open it up to “Pediatric Open Heart Surgery” to read all of our previous posts about Lev.

The picture above is the diagram of the “Fontan” procedure that Lev will undergo tomorrow. For those of you who are not into the medical mumbo-jumbo here are the stats:

Lev’s Catheter Procedure is … Tomorrow!

Our youngest, Lev Rubinstein, was born with multiple heart defects. You can read about his first two surgeries at www.iheartlev.com

Tomorrow marks the beginning chapter of his third open heart surgery – which is named the Fontan procedure. To be clear, Lev is NOT undergoing open heart surgery tomorrow.